Hoarding, Collecting, Accumulating: DSM-5 and American Life
How a new disorder developed from “a line carved in sand.”
Posted Jul 25, 2013
In the run-up to the publication of DSM-5, when mountains of press discussed the manual’s proposed content, the more-controversial changes naturally got the most attention. They included the decision to delete the so-called Bereavement Exclusion Clause, allowing Major Depression to be diagnosed among those still grieving intensely after 14 days.
Much less attention was given to Hoarding Disorder, which the press seemed to accept with relatively little doubt or fuss—perhaps because of the widespread popularity of the A&E series Hoarders, perhaps also because Americans, encouraged to be avid consumers, at some point must contend with the related problem of clutter—of having too much stuff.
DSM-5 characterizes Hoarding Disorder as “persistent difficulty discarding or parting with possessions, regardless of their actual value.” Sound familiar? Those afflicted insist on “a perceived need to save the items” and experience “distress associated with discarding them.” The result is an “accumulation of possessions that congest and clutter active living areas and substantially compromise their intended use.”
With apps now available for Americans having trouble parting with clutter, and channels such as HGTV giving hourly devotion to afflicted families struggling over whether to stay-but-renovate or expand into much-larger homes, one needn’t fall into the trap of confusing hoarding with collecting or simple accumulation to recognize that there are serious problems with the way the new disorder is defined. “Persistent difficulty discarding or parting with possessions” is language that makes overdiagnosis all but inevitable. For starters, the objects don’t need to have “actual value” for us to feel distress or difficulty parting with them. Additionally, with 30 percent of all British men self-identifying as collectors, what counts as clutter or reasonable “object accumulation,” including personal memorabilia, represents “a line carved in sand,” as Gary Greenberg put it in The Book of Woe, in an eye-opening account of how the American Psychiatric Association devised and approved the new disorder.
Given how accepting the media has been of that development, it was pleasing to see a cogent review of Greenberg’s book take issue with it, and by a psychiatrist himself citing decades of clinical experience. In the July 2013 issue of Tikkun Magazine, Phil Wolfson asked: “Is there really such a thing as a hoarding ‘disorder’?” Certainly, “there are humans who hoard, shutting themselves into narrow confines in their homes between piles and extraordinary collections of useless things that they consider their sacred, un-eliminable possessions. Their lives are often tortured, depressed, fearful, and isolated. Their relatives feel helpless and confused. They don’t seek treatment and if it is imposed, do very badly in terms of cleaning up their act. This is certainly a difficult and annoying thing. Not to be minimized as suffering. But an illness? Hardly. It has deep and complex roots to be sure. But it’s one of an infinite variety of strange behaviors of which most of us are capable at some time.”
“To be honest,” he added, in a personal aside that helps expose the wavy line joining obsessive collecting to hoarding and simple accretion, “I myself am a bibliophile. I hate throwing out my books. They are important to me, like friends that give me a sense of security, of times past, and of ideas and fantasies that I used to have.… It creates in me a bit of distress when I have to find more room for them. And for my mate, she may feel their presence and their Andromeda spread and have feelings. It’s not enough to reach the DSM-5 criteria to give me a hoarding disorder diagnosis, but it’s a symptom for sure.”
Wolfson’s anecdote nailed a symptom of “persistent”—possibly “unreasonable”— attachment to objects that are difficult to discard, generally because of their real or perceived value; they definitely can cause clutter, can grow bothersome to self and companions, and even increase risks as a fire hazard. Wolfson’s behavior checks all of the boxes in the DSM criteria (including, for some, impairment), yet for most of us it nonetheless remains squarely in the realm of standard, even obligatory (because professional) behavior.
In a 2010 article seeking to differentiate such behaviors but ultimately revealing how close they often are, psychiatrist David Mataix-Cols and his colleagues usefully conceded: “It is unclear if hoarding is as much of a problem in developing countries as it is in industrialized ones, in individualistic versus collectivistic cultures, and in urban versus rural communities (where space may be less of an issue). Research on different ethnic groups within Western societies is also lacking.” But with its single-minded (obsessive?) focus on biomarkers and open conjecture that “hoarding disorder may have unique neurobiological correlates” (April 13, 2013 Highlights of Changes from DSM-IV), the APA has turned much-needed attention from such necessary cultural and environmental factors, more or less limiting focus to the brain and its seeming disorders. Nevertheless, hoarding is widely acknowledged as stemming from a spectrum of factors, from compulsivity and unacknowledged trauma, to professional necessity and those who can’t let go of material because of its sentimental or seeming creative value.
The very elasticity of the APA’s new psychiatric condition heightens the risk that all such behaviors will end up receiving the same label—that the disorder will be widely misapplied. In failing to note that looseness of language, media reports unwittingly have stamped their approval on how the APA believes we should now treat “accumulated objects.” How to organize our lives and pasts—including how much of that history we should try to retain through attachment to objects—remains an active, ongoing question.