The Limits of Neurodiversity
Neurodiversity is a fresh way to see difference. Is it right for you?
Posted Mar 01, 2020
Neurological diversity is a biological fact. Neurological function varies between individuals just like other human traits. The difference is that neurological diversity has gone unrecognized until recently, while physical diversity has always been plain to see.
Human diversity emerges as a result of genetics and environment. There is a large heritable component to some neurotypes, just as body shape tends to run in families. But it’s not all genetics. Environmental factors also influence human development. Diversity is also driven by evolution as many traits confer situational advantages, but it’s always a balance as “too much” or “too little” shades from difference into disability.
The continuum of neurological function includes people with many different cognitive traits. Memory, emotional sensitivity, ability to focus on a task, mathematical ability . . . all those things vary, as does general intelligence. Emotional intelligence has long been recognized and we are now seeing that it is on a continuum with logical intelligence at the other end. In other words, some people are governed by emotions while others, in the manner of Star Trek’s Spock, are logical.
During the twentieth century, psychiatrists gave diagnostic labels to cognitive traits that had been observed for a long time, but not pathologized with a diagnostic label. Happy or sad were long-recognized states of mind; psychiatrists recognized extremes of these behaviors with terms like manic or depressed, and they created formal labels like “major depressive disorder.”
Attention deficit hyperactivity disorder (ADHD) became the medical term for something parents called “bouncing off the walls.” Being withdrawn into oneself, having a limited range of interests, and having an impaired ability to connect with and engage others became autism, or autism spectrum disorder. The extreme logical thinker may exhibit traits of autism while the extremely emotional person can manifest traits of schizophrenia.
For several decades following their introduction, terms like ADHD or autism were only used to describe people with severe, profound impairments. Those labels were bestowed on children whose behavior was far different from that exemplified by most kids. Since differences existed on a continuum it was up to the trained professional to determine when simple difference became pathology.
Whatever one calls it, the range of neurological function, encompassing both typical and abnormal behavior, observed across a number of domains, describes human neurological diversity. That is neurodiversity, but neurodiversity is also more. Neurodiversity has become an identity: When individuals who had received psychiatric diagnoses wanted to identify themselves in non-medical terms, they felt they were “more than a diagnosis,” and believed medical labels pathologized them or carried stigma. Soon the word neurodiversity was adopted by others who lacked a formal diagnosis but still felt “different.” For them, the term was not assertion of a medical condition, or an attempt to claim disability supports, but rather a way to center themselves in the world.
In the neurodiversity worldview, people whose neurology is “average” are called neurotypical. People whose neurology differs from average; i.e., having traits of autism, dyslexia, or ADHD, are neurodivergent. Neurodiversity is the term for the continuum, and the population may be called neurodiverse. While that seems straightforward, it implies “one way or the other” that does not exist in real life. Psychologists agree there is no such thing as “typical”: We are all individuals.
Therefore, thought leaders now question the use of the terms neurodivergent and neurotypical. They argue that neurotypicality is an invalid concept since there are no people who have been tested and found to be “midrange” in all cognitive dimensions. Instead, each of us has a mix of strengths and weaknesses, and since we are not generally tested, our abilities are only guessed at. Therefore, neurotypical is merely a rough approximation even as the population is undeniably neurodiverse. No one word defines us; individuals are best described by their specific traits or even by support needs.
Neurodiversity (the conjugate word) refers to biological reality, but the word has also become a term of identity, and usage can be confusing. When someone identifies as having autistic traits in the context of neurodiversity, they are not generally seeking medical supports or disability accommodation, although they may also seek those things through formal diagnosis. Rather, they seek a sense of community by identifying with what they believe is a like-minded group.
Self-diagnosis of autism or ADHD is controversial but anyone is free to embrace the neurodiversity paradigm and say they are “different” because they are not assuming a formal medical label.
In terms of identity, most who identify with the neurodiversity paradigm see themselves as different, not disordered. They may also feel disabled, or disabled and exceptional. They generally perceive their neurological diversity as part of healthy human diversity. However, not all people feel this way about neurodiversity. Some feel so disabled, or suffer to such an extent, that they reject the neurodiversity paradigm for themselves. They describe themselves as sick, damaged, or injured.
That difference in views may be expressed thusly: At its extremes, difference becomes disability. While the point of transition varies from one person to another, there is always a point at which healthy difference becomes pathology or disorder.
Studies have shown that individuals tend to think they are less disabled, even as observers think they are more disabled. In that sense disability is in the eye of the beholder. An exception would be in the world of work, where a person might not think of themselves as disabled, but they might not be able to complete certain tasks on time or at all.
Neurodiversity as a biological fact applies to everyone. Neurodiversity as a term of identity applies to many people, but a significant number who feel disabled reject the neurodiversity paradigm. That is one limit of neurodiversity.
Schools and workplaces are fast developing neurodiversity programs, with a view to accommodating a wider range of people in schools and in jobs. That is a laudable goal, and an array of supports will no doubt allow people who have been excluded from work or school in recent years to participate. Neurodiversity programs with intensive supports and a social welfare model – like Project Search – will help a number of people too disabled for other programs.
Beyond that, there remains a portion of the population whose cognitive differences limit engagement in school and preclude transition to work. They may not be able to communicate effectively, or they may have significant cognitive impairments. They may have medical complications like epilepsy that compromise their quality of life. Critics of neurodiversity express the fear that broad adoption of the neurodiversity paradigm renders such people invisible.
In this writer’s view, that need not happen. Programs to support less disabled people should not come at the expense of programs for the more disabled. Disability support is not a zero-sum game. Neurodiversity – whether as neurological fact or social identity – should not be perceived as denial of profound cognitive disability in its many forms. Neurodiversity is a way for people to identify themselves, but some people are so disabled they cannot do that, and they cannot rightly be called anything but seriously disabled.
March, 2020, John Elder Robison