Experts suggest ways to correct habits that keep us from resting well
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I can relate to just about everything on this list (except I'm Canadian so the medical side of things probably isn't nearly as bad from a financial point of view, just longer wait times and vastly underfunded medical resources). I was recently diagnosed with fibromyalgia. I've suffered for two years with fevers and body aches and flu like symptoms. I nap constantly, get winded going up the stairs, and I have difficulty doing even the most basic chores. I've been talked down to by family members and even doctors. My own doctor thinks I'm doing fairly well for someone with fibromyalgia because I can walk... I don't know what to think about that. Just because I'm not as weak as another sufferer doesn't mean that I'm not struggling in another capacity. The brain fog is hell, my stomach is always upset, and I had to step down from work after I struggled to hold my tools. There's not a lot of help out there for fibro sufferers. While we are disabled it's not recognized by all parts of the medical community. I've applied to alleviate my student debt, but even with my family doctor's support there's no telling for sure what the final outcome will be. Things feel bleak and hopeless, and if I wasn't married to my wonderful husband, a man who kisses me goodbye while I sleep every morning, and surprises me with flowers and chocolates when I'm feeling down, I don't know how I'd cope.
The cabin fever is the worst. I'm lonely at the best of times. I get stir crazy being cooped up, so I force myself to go out (even though a three hour trip downtown most certainly results in a four how nap upon return). The problem is if people see me out and about they assume I'm healthy and doing well. It's not true, I might feel slightly less awful but I'm still sick, I just don't want to spend the rest of my existence bed ridden. I miss human contact, making friends and socializing. I sometimes just sit in bed and cry, I feel like I'm grieving the loss of a normal life.
Making the best of 18 years of chronic pain and illness.
My life has been enriched in unexpected ways due to chronic pain and illness.
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