Thank YOU Sem for these comments__as they also mirror my own experiences! Wonder sometimes if we might be worrying ourselves into the grave? Nevertheless, really appreciate your blog, Toni, and thank you Sem for your thoughts! Aloha from Hawaii___Bill

Anonymous wrote:

Thank you Toni for addressing these issues. I experience each point you talked about, and like you I have no concrete answers. I was diagnosed at 52 with MS and now I'm 72. A lot of changes in this body. Is it age, is it MS? What would I be like at 72 if I didn't have MS and all these other medial conditions? I watch my 72 year old neighbors bound around like teenagers, doing doing doing, would I be like that?
I've also had to consider osteoporosis meds, as my bone density tests show severe osteoporosis. That is another long story. - sometimes feeling so pressured by doctors to take the meds (I did try the pills years ago and had reactions so had to stop) instilling fear in me. I read the side affects - especially for injectibles, and they are just as you say, how I already feel, and they can last up to 6 months after the yearly shot, so I would be stuck until they hopefully faded. I declined. And Exercise - I have to really watch my mind with this one. Like you, I can do easy exercise, for short periods, which for me is in the pool which is not weight bearing (I can not walk except within my house, to get around which I am grateful for - I can not "take walks"). I find chair yoga very helpful which I do along with a DVD. However, when I read the articles about the benefits of exercise I fall so short. And the big one - what if I end up in either the hospital or a nursing home (what if my husband dies first - this is where I will go).This is the scariest for me. I have a very regimented program of medication as well as supplement taking, resting, etc. just to keep me functional. I have spent time in nursing homes while being the caregiver for my father . . . . understaffed . . . not much personal care . . . Now have a best friend my age who had a stoke last year and is living in a nursing home. She is fully functional mentally, but physically needs everything done for her . . . she spends her time waiting for assistance, living in a regimented institutional setting with no other patients she can really relate to. So heartbreaking, not to mention the expense. I've found all I can do about all the points you brought up is do what I can - see my doctor, do as much movement as I can, eat well, meditate daily, and do my best to bring myself into the present when I find myself worrying. Otherwise I'll be living in anxiety - which I sometimes do when I think about this too much. Thank you so much for addressing these issues, I don't feel so all alone reading your article and I am all ears to hear more about this subject. I find few people I can talk to about this as my friends are all still really active, with some slowing down - but slowing down for them is a few days of illness. So they don't really get my situation, yet. Aging with chronic illness or just aging in and of itself is like taking a trip to a completely unknown place and it can be scary for me. I never knew it was going to be this challenging.

More Posts