The Autism Spectrum

A cognitive neuroscientist explores autism, Asperger's syndrome, and related disorders.
Lindsay M. Oberman, Ph.D. is a cognitive neuroscientist studying autism spectrum disorders. See full bio

Comments on "Stigma"

Stigma

Has the increased awareness of disorders on the autism spectrum helped or harmed the stigma? Read More

Stigma and publicity

Great question. Personally, I think that stigma has been reduced by increased awareness about the disorder. Obviously, this is a great thing as folks who meet criteria for any disorder on the autism spectrum are thus less likely to be mistreated or misunderstood.

At the same time, I think publicity also has had its deleterious effects. As is the case with any phenomenon that receives significant media attention, the balance in what is covered has been skewed. What I mean is, research findings, untested theories, and theories inconsistent with data receive equal attention. As a result, a convincing individual with a compelling personal story is seen as providing equally valid information regarding autism spectrum disorders as are individuals who systematically study such conditions.

This, in my opinion, is horrifying. I don't say that to demean individuals who tell compelling stories or who have alternative beliefs, but rather to emphasize the importance of understanding the facts as laid out by data rather than relying on our well intentioned, but oftentimes misguided hearts when it comes to mental illness.

http://www.psychotherapybrownbag.com

Response to Stigma and Publicity

Yes. I agree. Sometimes unfortunately celebrities are put on TV and are treated as "experts". I often wish that they would have more scientists on these shows like Oprah or CNN to give the more objective perspective rather than the anecdotal perspective, which is obviously important, but obviously biased.

I'm in the UK and what I

I'm in the UK and what I usually see in the media when it discusses things like this is they usually have a patient and an expert on the show together, they talk to the patient first about their personal experience, and then they talk to the expert for a wider view.

When I talk to parents. I

When I talk to parents. I usually tell them to get their information first hand. Either by reading information on websites of respected organizations like the APA or Autism Speaks or if they have access, to read scientific journals or periodicals like Scientific American. The truth is that some websites are accurate and well intentioned, but others just want to put forward their (sometimes) inaccurate point of view and it is hard to tell the difference. In the end, we all need to accept each other for who we are and learn to live and love together while we understand what makes us different and unique. It is through understanding and not blaming and trying to "fix" that stigmas will begin to disappear.

Post new comment

The content of this field is kept private and will not be shown publicly.
  • Web page addresses and e-mail addresses turn into links automatically.
  • Allowed HTML tags: <a> <em> <strong> <cite> <code> <ul> <ol> <li> <dl> <dt> <dd>
  • Lines and paragraphs break automatically.

More information about formatting options


Subscribe to The Autism Spectrum

Recent Posts in The Autism Spectrum

Do Vaccines cause autism? Take 2.
Transcranial magnetic stimulation and autism.
Does A Hyperstimulating Environment Cause ASD?
World Autism Awareness Day 2009
Autism Diagnosis, Benefit or Stigma?

Find a Therapist

Search our customized Directory for a licensed professional near you.

Current Issue

Everyday Creativity

How to start living creatively and reap the benefits.