Couples With Autistic Children

Every couple struggles with maintainng intimacy and kids always add stress. But few people—including parents the themselves—understand the unique effect raising an autistic child can have on a union. 

Two Fatal Technical Flaws In The DSM 5 Definition Of Autism

Needs immediate correction.

A poorly written DSM criteria set is useless. The essential prerequisite to an accurate diagnosis is that different clinicians can agree on whether it is present or absent in a given individual. If the definition lacks precision, different people will interpret it in their own different and idiosyncratic ways.

The DSM 5 definition of Autistic Spectrum Disorder has two fatal technical flaws that make it impossible to interpret and use reliably.

A truncated version of its Criterion A reads as follows:

"A. Persistent deficits in social communication and social interaction across multiple contexts, as manifested by the following....

1. Deficits in social-emotional reciprocity

2. Deficits in nonverbal communicative behaviors used for social interaction

3. Deficits in developing, maintaining, and understanding relationships."

The DSM 5 examples offered for each of these three items are vague enough to overlap into normality, but I wouldn't have made a big fuss about this.

The really fatal flaw here is that no instructions are given as to whether 1 item, 2 items, or all 3 items must be present to make the diagnosis of Autistic Spectrum Disorder. The diagnosis will vary dramatically from rater to rater, institution to institution, and place to place depending on which of these three different possible convention is chosen. It will be even more impossible than it is now to determine rates of autism and why they shift so much over time.

The second fatal flaw is comes in the following statement attached to the end of the criteria set for Autistic Spectrum Disorder:

"Note: Individuals with a well established DSM-IV diagnosis of autistic disorder, Asperger's disorder, or pervasive developmental disorder not otherwise specified should be given the diagnosis of autism spectrum disorder. Individuals who have marked deficits in social communication, but whose symptoms do not otherwise meet criteria for autism spectrum disorder, should be evaluated for social communication disorder. "

This throws wide open to raters the choice of using DSM IV criteria or DSM 5 criteria depending on their personal preferences.

DSM 5 has essentially made it clinician's choice how to define and diagnose Autistic Spectrum Disorder. Some will require 1 item from criterion A; others 2; yet others 3; and some will chuck DSM 5 altogether and use the very different definitions that are contained in DSM IV

The diagnosis of Autism is already badly muddled. There has been a forty-fold increase in rates in just twenty years. Some of this is due to the introduction of Asperger's in DSM IV, some to improved case finding and reduced stigma, but a significant portion comes from loose and inaccurate diagnosis.

DSM 5 turns the current confusion into a complete Babel. The impossibly vague and confusing DSM 5 definition of Autistic Spectrum Disorder is essentially useless for clinical or research purposes and is not a trustworthy guide for determining school services.

How could this possibly happen? Sadly, the inevitability of this kind of blooper was predictable and predicted. Criterion writing is a rare skill. Despite years of practice, I am pretty bad at it and I have known only a handful of people who could really do it well. The DSM 5 work groups had little supervision and were given far too much freedom to write criteria their own way. The result is an amateurish botch.

  Mistakes this obvious probably would have been picked up if there had been time for careful copyediting. But DSM 5 was prematurely rushed to press in raw form because there were many delays in meeting deadlines and profits from it were built into this years budget. If any further proof were needed, this clinches the absurdity of DSM being an APA publishing property rather than a public trust.

These egregious mistakes require immediate correction. Too much depends on the diagnosis of autism to let it ride on each clinician's random preferences.