Odd Girl In

How do I fit in?

Boulevard of Broken Dreams Refound: At the Intersection of NLD and Research

Have studies shown that people with NLD are predisposed to suicide and depression? A seminal study and supporting papers says yes. Then where are the statistics to back this supposition? Read More

NLD

Pia - I has been suggested that my 13 year old has NLD and I see so much of her in you! You are very correct, so few studies on NLD. My experience has been that the school districts don't even recognize it at all, let alone include NLD as a qualified learning disability for Special Ed. What a shame.
But hats off to you for hanging tough and being tenacious in your search for self-help and awareness. Great article!

Laurie Hurley
Witty Networking Queen, Educational Matchmaker

Thanks and Facebook has some great groups

Facebook has some wonderful NLD groups with many people willing to give advice. Sera Rivers has a blog here. She's a parent and a fierce NLD advocate www.psychologytoday.com/blog/lonely-education
Good luck and I love love love your titles!!!!

Study and live

It's important, even on Psychology Today, to remember that a study is a condensed breath of experience, not a life.

Thank you for pointing out

Thank you for pointing out the massive lack of research on adult NLD. I was finally diagnosed a couple of years ago, but never got much help with dealing with the consequences of the disorder. Just to make my life even more fun, I have a moderate level hearing impairment. Even with my hearing aids, I do not have any idea what "normal" people can and cannot hear. Since NLD's are reputed to be auditory learners, it means I'm even more in the dark about social interactions than I would be with just the NLD.

After the initial diagnosis, I used my university resources to try to find out about the disorder. I came up almost entirely empty, except for a few references to Rourke. Most of the literature is in special education and totally irrelevant to anyone past high school.

You mention communities on facebook. Any suggestions? I have very few friends and my desk is chaos. My house is ok because I married a man who can't stand more than a certain amount of clutter and he picks up the stuff himself. Enough about me, though. Thank you for your blog, and keep writing.

Here are two facebook groups

I'm going to do a post with resources for adults but here are two excellent facebook groups

www:facebook.com/home.php?#!/home.php?sk=group_2237450434&ap=1
www.facebook.com/home.php?#!/home.php?sk=group_83530935976&ap=1

If you have any problems reaching them please email me

NLD

I am so glad I have come across your blog, it is so hard to find any resources that relates NLD to adults.

I was diagnosed with NLD when I was 22, I am now 25 and at college (a bit late in life but what the hell). I was really looking forward to going back to college and studying, because I thought I might be able to get some help with my studies as I have a report from an educational psychologist with loads of suggestions to help me study better and get decent grades to get into university. My first year at college I was treated unfairly by tutors and learning support, while another student who has dyslexia had constant help with their studies, was given a lap top and had one to one support. I was given a Dictaphone and told to deal with it. I did not let this stop me, I finished my first year with really good grades in Biology and Calculus. I would be at college from 9 o clock in the morning til 9 at night, constantly studying determined not to fail. When I got stuck with work and asked for help I was belittled and punished for pestering tutors. I wish NLD was more widely known about in English schools and colleges as I feel that this is why I was treated the way I was, unlike many other students who have dyslexia and other more common learning disabilities.

Also, is there anyone else who has been in a similar situation to me?

I think most of us have experiences like yours

Hi I'm sorry it took me so long to get back--was going through some personal stuff.

Unfortunately NLD is so little known and then people argue as to what it really is. I think it's amazing that you got good grades in Calculus--Biology is I think a bit easier but only because for some reason my teacher saw that I understood the material but couldn't take the tests. he was the one teacher in my entire school career to actually go out of his way and give me different tests

Many people are in similar situations to you. I suggest you look up "nonverbal learning disorder" in facebook--there are some great groups

Lack of research on NLD

Thanks for your articles Pia. I am 63 and was diagnosed at 42. Before the diagnosis and for sveral years after, my life was, to say the least, very difficult. I kept getting fired from jobs. My divorce was largely due to this. I was very depressed.

I appreciate your analysis of the Rourke et al article. It was the first one I read after my diagnosis. Despite having the education (MS in Guidance & Counseling), I did not question his lack of evidence.

The only adult outcome study I have found is by Anthony T. Dugbartey published in Seminars in Neuropsychiatry, Vol 5, No 3 (July), 2000: pp 198-204. Dr. Dugbartey is (was) at the University of Victoria in British Columbia. His email address is (was) tonydu@uvic.ca

Robert

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Pia Savage is a writer, journalist, and former social worker diagnosed with Non Verbal Learning Disorder.

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