Love and Dementia

To love what is: The caregiving life.

How to Survive in a Hospital and Fire a Doctor

To continue the story of my memoir, To Love What Is:

After six weeks in a Maine ICU, my husband, Scott, who suffered traumatic brain injury (TBI) after falling from a sleeping loft, was flown to NYU Hospital in New York for rehab.

Rehab? On his first night there he fell off a gurney, causing new brain clots. Read More

Hey Alix, First, I hope that

Hey Alix,

First, I hope that your husband recovers quickly and well. It seems just from this post alone that you care for him deeply. Though it was foolish for the doctor to ramble and not give proper directions, thus frustrating your husband, I question if that alone is a good enough reason to be fired.

This experience you are having is quite unique. I have heard of negligence and malpractice before, but never from the person who has lived through it. My only concern is for the not guilty--you, your husband, and those who did not mean to neglect or harm your husband.

Please know that I met

Please know that I met several times with the psychologist whom I eventually fired and explained my objections. She did not (could not?) change her ways, so i felt obliged to fire her, especially in face of scott's anger at her (useless) treatment of him. Perhaps her mechanistic approach to cognitive remediation works with other TBI patients, but it didn't work with my husband.

I don't believe that our experiences were "unique." Big hospitals can be dangerous places; things frequently go wrong. If one is being treated by a team of a dozen or more doctors, it's not surprising that several of them are duds.

Thanks for your good wishes.

Please know that I met

Please know that I met several times with the psychologist whom I eventually fired and explained my objections. She did not (could not?) change her ways, so i felt obliged to fire her, especially in face of scott's anger at her (useless) treatment of him. Perhaps her mechanistic approach to cognitive remediation works with other TBI patients, but it didn't work with my husband.

I don't believe that our experiences were "unique." Big hospitals can be dangerous places; things frequently go wrong. If one is being treated by a team of a dozen or more doctors, it's not surprising that several of them are duds.

Thanks for your good wishes.

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Alix Kates Shulman is the author of 14 books including the best-seller Memoirs of an Ex-Prom Queen and a memoir about life with her brain-injured husband, To Love What Is.

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