Genetic Crossroads

The intersection of biotechnology, reproduction and society
Marcy Darnovsky, Ph.D., is Associate Executive Director at the Center for Genetics and Society. See full bio

Designer-Baby Business?

Sensible policies can prevent misuses of new reproductive technologies.

A few weeks after the OctoMom story sent jaws dropping all over the world, another assisted reproduction controversy emerged: A Los Angeles fertility clinic announced a new program to screen embryos not just for sex – an increasingly common practice – but also for future children’s eye color, hair color, and skin color.

The “designer-baby service” didn’t reach the level of media super-saturation that OctoMom did. But it too prompted condemnation, enough to cause the doctor who offered it to back off, at least for now.

Where does that leave our assessment of the U.S. baby business? Millions of people have formed families through assisted reproduction, and its appropriate uses should be accessible without discrimination on the basis of marital status or sexual orientation. But as the IVF octuplets and designer-baby program demonstrate, assisted reproduction techniques can be terribly abused.

Multiple births – even triplets and twins – put mothers and babies at much greater risk than single births. Pre-ordering the sex or cosmetic traits of a child is a recipe for family discord and societal conflict. If parents pay a lot of money for a blond-haired, blue-eyed athlete but instead get a freckled poet, do they send her back? If the affluent start buying "better" babies, what new kinds of discrimination and inequality are in store?

Nearly every industrialized country has adopted regulations to protect fertility patients and their children, and to prevent unacceptable assisted reproduction practices. But not the United States. Around the world, America is known as the "Wild West" of assisted reproduction.

Instead of enforceable regulations and oversight, the U.S. relies almost entirely on voluntary guidelines issued by the American Society for Reproductive Medicine, the fertility industry's professional organization. But the sad fact is that the majority of U.S. fertility centers break these rules with no apparent shame or consequence. Data from the Centers for Disease Control show that more than 80 percent of U.S. clinics disregard recommendations to implant no more than two embryos at a time in young women.

And though the guidelines discourage embryo screening for sex (except in those rare cases where there's a serious sex-linked condition), a quick web tour shows that many fertility clinics openly advertise it. And according to a study by the Genetics and Public Policy Center, 42% of clinics that offer genetic selection have used it for non-medical sex selection.

Obviously, we need to be careful and thoughtful about regulating the fertility industry. Anti-choice legislators in at least one state have already tried to slip fetal “personhood” language into a bill that purported to address IVF clinics. But there's no reason why we can't set rules of the road for the assisted reproduction enterprise that simultaneously protect reproductive rights.

In many countries, fertility clinics are licensed by a government agency. This allows for rules to be modified as needed but provides a mechanism for ensuring that clinics are following them. A few extreme reproductive practices are typically prohibited outright – most commonly efforts to clone a child or to create "designer babies" by genetic modification or embryo selection. Rules about permitted procedures are set and enforced by the licensing agency. These regulatory schemes provide a tried-and-true model that we can adapt for our country.

The ongoing revelations from the banking and financial sectors are teaching us hard lessons about the dangers of inadequate regulation and oversight. The fertility industry, too, has shown the limits of self-regulation. It's time for the federal government to tighten the reins, set the rules, and establish ways to enforce them.



Subscribe to Genetic Crossroads

Find a Therapist

Search our customized Directory for a licensed professional near you.

Current Issue

Everyday Creativity

How to start living creatively and reap the benefits.