Lyme Disease: The Great Imitator

Three decades after Lyme disease was identified in southeast Connecticut, its neuropsychiatric fallout remains misunderstood, not just by local doctors but also by many of the rheumatologists, dermatologists, and neurologists who defined the disease at first. Patients with this controversial but common outcome, most often a consequence of late diagnosis, may negotiate arduous paths back to health. Yet once the problem is recognized, aggressive treatment can help. Now, my son Jason, the sickest in my family, is about to graduate from Brown. His brother, David, will be a junior at Vassar. As for Mark and me, we work long, hard days as writers and editors, in a place we love, Manhattan, as far from the tick-infested forests of Westchester County as we can get. —Pamela Weintraub

Protect Yourself!

The best way to avoid neuroborreliosis is through early diagnosis and treatment for Lyme disease. Remember, Lyme in its initial stage is usually easily treatable; however, delayed diagnosis or inadequate treatment can lead to serious brain, heart, or joint problems.

  • When in a Lyme-endemic area check yourself, family members, and pets for ticks. If you live in such an area, check daily. Remember that deer, mice, birds, and other small animals—found right in your backyard—carry ticks. Nymphal ticks are the size of a poppy seed in early spring and are particularly hard to see.
  • Remove the tick properly with fine tweezers. If you are not equipped to do this, go to an emergency room and have the doctor remove the tick.
  • Store the tick in a jar and take it to a Department of Health laboratory or testing facility to have it tested for Lyme disease.
  • Keep in mind that a single tick bite can transmit more than one tick-borne illness, such as babesiosis or ehrlichiosis. These may need to be treated with alternate medications.
  • Treat Lyme early and prophylactically with antibiotics. Don't wait for a positive test—antibodies against the organism will not convert to give a positive test result for about six weeks, placing you at greater risk for neuroborreliosis if you turn out to be infected.
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