In June of 1982 I gave birth to my first son, Chris. At the time I
thought I had all the patience, knowledge and expertise necessary for
raising a child. After all, I had worked in an intensive care unit,
emergency room and as head nurse of a Mental Health Clinic. I was also
the oldest sister of eight siblings.
I couldn't have been more wrong.
I was not even remotely prepared for what I was about to face as a
mother. My dream of a little house with a white picket fence was quickly
replaced with an emotional roller coaster. My son, though intelligent and
articulate, was also very easily distracted and incapable of sitting
still and staying on task. No matter what I asked him to do, his answer
was a defiant, "No." He was verbally aggressive and yelled at
me routinely. During his fits of rage, everything but the kitchen sink
came out of his mouth. And every time, it felt like someone was putting a
knife in my heart.
Until Chris was 8 years old, I fought to understand why motherhood
was so different for me compared with other women. Then he was diagnosed
with Attention Deficit Hyperactivity Disorder (ADHD) along with
Oppositional Defiant Disorder (ODD), which co-occurs in about 40 percent
of those diagnosed with ADHD. But my story is not about ADHD. It's about
learning to cope with the emotions I faced firsthand during both the
years before Chris was diagnosed and those following while raising a
child with special needs.
Chris and I weren't the only ones having a hard time communicating.
The constant stress also took a toll on my relationship with my husband
and my younger son. I yelled a lot, my husband was certain I was being an
inappropriate mother, and Chris was confused about the level of respect
between his mother and father. We were a family falling apart.
Thankfully, things started to change when Chris began receiving
appropriate treatment. With help from professionals, I was finally able
to let go of the blame and judgment I felt from others. Then I sought out
other parents who were experiencing similar issues. My husband and I
began attending regular educational forums and conferences, soaking up
support and knowledge to design an effective plan of action for Chris'
treatment.
We went through every type of treatment possible; when one
intervention didn't work, we tried another. Adderall, a psycho-stimulant,
increased Chris' ability to concentrate and calmed his defiance, but
medication is a short-term solution to a 24-hour-a-day problem. Behavior
modification charts were extremely useful. I combined them with positive
reinforcement to enforce agreed-upon rules, and each chart was
age-specific and used until the desired behaviors had become
automatic.
Chris' condition will likely be a
lifelong struggle for him. But he is learning to accommodate his needs
and I have learned to pick my battles wisely.
I had the opportunity to speak at a workshop sponsored by
the Center for the Advancement of Child and Adolescent Mental Health on
this very topic. It reminded me of the importance of parental networking,
and that early intervention is key in both taking control of the disorder
and alleviating family stress. I hope my story will help others who feel
alone in confronting ADHD. And I'm looking forward to a loving future
with my own family, and to enjoying our lives together.
Tags:
ADD,
ADHD,
attention deficit hyperactivity,
attention deficit hyperactivity disorder,
attention deficit hyperactivity disorder adhd,
children,
defiant disorder,
deficit hyperactivity disorder,
deficit hyperactivity disorder adhd,
emergency room,
emotional roller coaster,
head nurse,
intensive care unit,
kitchen sink,
knife in my heart,
little house,
mental health clinic,
mother and father,
parenting,
ritalin,
white picket fence,
younger son