In Her Own Words

Kate sees Timmy in the playground and notices that he doesn't seem like other kids. She asks, “What's wrong with that little boy?” Her mother tries to answer some of Kate's questions, then suggests that Kate go over and meet Timmy. It's really a story about what they have in common as opposed to what separates them. Kate finds out that he has a lot of the same desires as she does. They both hate math. But they both enjoy sports, although Timmy is often excluded. Kate makes an effort to include him in her life. This makes his life better, and it makes her own life more enriched. The story is asking kids to take that initial step. We don't all have to be best friends, but we can all make an effort. So it's about being sensitive to other people's issues and talking about inclusion.

I work with the Best Buddies movement and I talked to a guy who volunteers as a buddy. He said to me, “I've gotten more out of this relationship than my buddy has. I've been inspired; I've learned about courage and overcoming obstacles.” We all could learn from someone who has such a different life from ours.

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This brings to mind a landmark film, “Being There,” in which Peter Sellers plays a mentally retarded man who finds himself giving advice to powerful people. At the end of the movie, you get the impression that this simple gardener is probably going to become the next president of the United States. Just how much can a developmentally disabled person accomplish?

It's up to the person and his or her family. Also, it's not about what you can accomplish in your life; I think it's about the peace, acceptance and validation you have in your life. Can people with developmental disabilities lead productive, fulfilling lives? You bet. Will one of them become the next president? I doubt it. But you know, my kids probably won't, either. And that's OK. It doesn't matter. My kids can be whatever they want to be and do whatever it is that brings them happiness. That's a great thing.

Also, in the book you note that when Timmy was born, Timmy's mom was told he wasn't quite normal. His mom was overwhelmed with sadness.

Many people tried to talk me out of including this, but I felt strongly about it. They thought it might make kids who have a developmental disability feel bad. But it's real. All the mothers I interviewed told me that they had felt that sadness. They had to give up dreams that they might have had and adjust and build new ones. All these mothers went through a grieving process of being overwhelmed and feeling disappointed and guilty.

In all three of your books you've addressed profoundly important issues. That, perhaps, is why you are connecting with so many people. My nanny, for example, got great confidence from your book, Ten Things I Wish I'd Known Before I Went Out Into the Real World.

Thousands of young women have said to me, “You know, I gave this book to my parents so they would understand my passion.” One girl, who wanted to be a teacher, told me that her parents kept pushing her toward higher-paying careers. And she said to me, “I gave them your book and my mother finally understood that teaching is my passion.”

As for What's Heaven?, I think all parents handle family issues in their own way. I wrote this book to help promote discussion about death with children. From there you can add or embellish or talk about your own family's beliefs, whatever they may be. I think any way you broach the subject or you try to get into your child's inner life is good.

Do you have any advice for parents of the developmentally disabled?

People have asked me, “Did you write this book for parents of disabled children?” Actually, I wrote it for parents who don't have disabled children. I wrote it to help them understand what parents of the disabled go through and what their struggles are about, and hopefully, they will treat those in the disabled community with more sensitivity in the future.

Tags: bicycles, developmental disability, forrest gump, great grandmother, Heaven, i am sam, little girl, Maria Shriver, Olympics, parachute, parenting, people with developmental disabilities, profound effect, robert epstein, saran wrap, sequel, special olympics, stereotypes, timmy, young man

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