Recovery with a catch

A positive result on an HIV test was once tantamount to a death sentence.Now, new drugs known as protease inhibitors are giving many AIDS patients a reprieve--but this medical miracle comes with its own complications.

Stephen Ferrando, M.D., at Cornell University Medical College both treats AIDS patients and researches the kind of help they need, including how to stick to the demanding treatment regimen and how to reconstruct lives ravaged by illness.

Many of his patients, he says, have gone on disability, cashed in their insurance policies, used up their personal credit, and prepared themselves for a shortened life. "Then, awakening like Lazarus, they find themselves with a real crisis on their hands," he reports.

For mental health workers, the challenge is to help these people straighten out their lives, reconsider their choices, and adjust expectations to include a long-term future.

Some who do well on protease inhibitors experience "survivor guilt" at having been saved while others suffer. But those for whom the drugs never worked at all, or worked and then stopped, may be the saddest cases doctors see.

"There's a huge amount of hype about the `cure' for AIDS, the end of the plague," says Ferrando. "The fact is, many individuals are simply not benefiting from these treatments."

Psychologists and psychiatrists have the daunting task of helping them cope with their anger and crushing disappointment--and an often keen sense of injustice. Despite the great success of the new agents, says Ferrando, "we still see people for whom it's too late."

A.M.P.

Tags: AIDS, aids patients, coping, cornell university medical, cornell university medical college, cure for aids, daunting task, death sentence, ferrando, HIV, hiv test, insurance policies, keen sense, medical miracle, medicine, mental health workers, new drugs, personal credit, physical illness, protease inhibitors, reprieve, survivor guilt, treatment regimen, university medical college

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